{"id":49,"date":"2026-01-29T15:35:43","date_gmt":"2026-01-29T15:35:43","guid":{"rendered":"https:\/\/ifuse.info\/?page_id=49"},"modified":"2026-03-15T16:13:46","modified_gmt":"2026-03-15T16:13:46","slug":"about","status":"publish","type":"page","link":"https:\/\/ifuse.info\/","title":{"rendered":"About"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"49\" class=\"elementor elementor-49\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0a988f9 e-con-full e-flex e-con e-parent\" data-id=\"0a988f9\" data-element_type=\"container\" data-e-type=\"container\" id=\"Hero\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t<div class=\"elementor-element elementor-element-9d18c20 e-con-full e-flex e-con e-child\" data-id=\"9d18c20\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-4f7ad87 e-con-full e-flex elementor-invisible e-con e-child\" data-id=\"4f7ad87\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;animation&quot;:&quot;fadeIn&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-efc7129 elementor-widget elementor-widget-heading\" data-id=\"efc7129\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Four Children. One Chance. Your Help.<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-dec214c elementor-widget elementor-widget-text-editor\" data-id=\"dec214c\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;}\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">Together, we can return groundbreaking research into a real therapy for children affected by the ultra-rare PGAP1 gene defect<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e2ad1be elementor-align-left elementor-mobile-align-center elementor-tablet-align-center elementor-widget elementor-widget-button\" data-id=\"e2ad1be\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;}\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm elementor-animation-grow\" href=\"#donate\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Make a difference<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7bbf2d7 e-con-full e-flex e-con e-child\" data-id=\"7bbf2d7\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-2d14cbef e-flex e-con-boxed elementor-invisible e-con e-parent\" data-id=\"2d14cbef\" data-element_type=\"container\" data-e-type=\"container\" id=\"about\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-536d234a e-con-full e-flex e-con e-child\" data-id=\"536d234a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-183b8f69 elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"183b8f69\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">About IFUSE<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-29d7437d elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"29d7437d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">IFUSE is a non-profit initiative dedicated to advancing research on ultra-rare genetic diseases. These conditions affect only a handful of families worldwide and are often overlooked in traditional research funding structures.<\/p><p class=\"p1\">Because patient numbers are so small, pharmaceutical companies rarely invest in developing therapies. As a result, families are left waiting, often without realistic treatment options.<\/p><p class=\"p1\">We believe that rarity must never mean invisibility.<\/p><p class=\"p1\">IFUSE supports international research collaborations, helps finance early-stage laboratory work, and works closely with scientific partners to move promising discoveries toward real therapies. Our goal is simple but urgent: to give affected children not just hope, but a tangible chance at treatment.<\/p><p>Our mission is simple: to give families affected by ultra-rare diseases hope and a real chance for treatment.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-10725e96 e-flex e-con-boxed elementor-invisible e-con e-parent\" data-id=\"10725e96\" data-element_type=\"container\" data-e-type=\"container\" id=\"donate\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-4edb40e5 e-con-full e-flex e-con e-child\" data-id=\"4edb40e5\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3e2947cd elementor-widget elementor-widget-heading\" data-id=\"3e2947cd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Make an Immediate Impact<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-60bae03d elementor-widget elementor-widget-text-editor\" data-id=\"60bae03d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Whether it\u2019s \u20ac10, \u20ac50, \u20ac100, or \u20ac5,000 \u2013 every contribution brings us closer to making a therapy possible for our children. Together, we can make it happen!<\/p><ul><li>Private donors enable important steps in research with small and mid-sized donations.<\/li><li>Companies and major sponsors can play a decisive role in fully funding the project.<\/li><\/ul><p><span style=\"font-family: var( --e-global-typography-text-font-family ), Sans-serif; font-size: var( --e-global-typography-text-font-size );\">We\u2019ve already come a long way \u2013 but we can\u2019t move forward without you.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4a087720 elementor-align-left elementor-mobile-align-center elementor-tablet-align-center elementor-widget elementor-widget-button\" data-id=\"4a087720\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm elementor-animation-grow\" href=\"#\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Donate Now<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-eac7a98 e-con-full e-flex e-con e-child\" data-id=\"eac7a98\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-74d6a84 e-flex e-con-boxed elementor-invisible e-con e-parent\" data-id=\"74d6a84\" data-element_type=\"container\" data-e-type=\"container\" id=\"Matters\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-22515de e-con-full e-flex e-con e-child\" data-id=\"22515de\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-48aac00 elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"48aac00\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Why this matters<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-202115e elementor-widget__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"202115e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">Emil (7), Jonathan (9), Benjamin (11), and Carlo (11) are four joyful boys from Frankfurt, Hamburg, and Mecklenburg-Vorpommern. What they share is an extremely rare genetic disorder called <span class=\"s1\"><b>PGAP1<\/b><\/span>.<\/p><p class=\"p1\">They cannot speak, walking is difficult, and many everyday tasks require support. And yet they laugh, play, cuddle \u2014 and their families fight for them every single day.<\/p><p class=\"p1\">Worldwide, only <span class=\"s1\"><b>21 children<\/b><\/span> are known to be affected by this gene defect. Geneticists describe it as a \u201cfreak of nature,\u201d with odds of approximately <span class=\"s1\"><b>1 in 21 million<\/b><\/span>.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6d727ef e-flex e-con-boxed elementor-invisible e-con e-parent\" data-id=\"6d727ef\" data-element_type=\"container\" data-e-type=\"container\" id=\"project\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-05685a9 e-con-full e-flex e-con e-child\" data-id=\"05685a9\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-26d31a7 elementor-widget elementor-widget-heading\" data-id=\"26d31a7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">PGAP1 Research Project<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9ec81f0 elementor-widget elementor-widget-text-editor\" data-id=\"9ec81f0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">Researchers at the <span class=\"s1\"><b>Children\u2019s Medical Research Institute (CMRI)<\/b><\/span> in Sydney have discovered a small molecule that can stimulate the defective PGAP1 gene.<\/p><p class=\"p1\">Laboratory tests are promising.<\/p><p class=\"p1\">The next step is testing the molecule on stem cells from affected children.<\/p><p class=\"p1\">The research collaboration with <span class=\"s1\"><b>UMG G\u00f6ttingen<\/b><\/span> is ready.<\/p><p class=\"p1\">Only the funding is missing.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b9c3dda e-con-full e-flex e-con e-child\" data-id=\"b9c3dda\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-7413b13 e-flex e-con-boxed elementor-invisible e-con e-parent\" data-id=\"7413b13\" data-element_type=\"container\" data-e-type=\"container\" id=\"faq\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-76221fe0 elementor-widget__width-inherit elementor-widget elementor-widget-toggle\" data-id=\"76221fe0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"toggle.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-toggle\">\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<h2 id=\"elementor-tab-title-1981\" class=\"elementor-tab-title\" data-tab=\"1\" role=\"button\" aria-controls=\"elementor-tab-content-1981\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-right\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><svg class=\"elementor-toggle-icon-opened e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Why is private funding needed?<\/a>\n\t\t\t\t\t<\/h2>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-1981\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"1\" role=\"region\" aria-labelledby=\"elementor-tab-title-1981\"><p class=\"p1\">Ultra-rare diseases are usually not funded by pharmaceutical companies or public programs. Without private donations, this research cannot continue.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<h2 id=\"elementor-tab-title-1982\" class=\"elementor-tab-title\" data-tab=\"2\" role=\"button\" aria-controls=\"elementor-tab-content-1982\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-right\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><svg class=\"elementor-toggle-icon-opened e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Where does my donation go?<\/a>\n\t\t\t\t\t<\/h2>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-1982\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"2\" role=\"region\" aria-labelledby=\"elementor-tab-title-1982\"><p class=\"p1\">100% of all donations go directly into the research project at CMRI in Sydney and the collaboration with UMG G\u00f6ttingen.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<h2 id=\"elementor-tab-title-1983\" class=\"elementor-tab-title\" data-tab=\"3\" role=\"button\" aria-controls=\"elementor-tab-content-1983\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-right\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><svg class=\"elementor-toggle-icon-opened e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Does a small donation really help?<\/a>\n\t\t\t\t\t<\/h2>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-1983\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"3\" role=\"region\" aria-labelledby=\"elementor-tab-title-1983\"><p class=\"p1\">Yes. Many small donations make the critical next research steps possible.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-toggle-item\">\n\t\t\t\t\t<h2 id=\"elementor-tab-title-1984\" class=\"elementor-tab-title\" data-tab=\"4\" role=\"button\" aria-controls=\"elementor-tab-content-1984\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon elementor-toggle-icon-right\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-toggle-icon-opened\"><svg class=\"elementor-toggle-icon-opened e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-toggle-title\" tabindex=\"0\">Is this research already underway?<\/a>\n\t\t\t\t\t<\/h2>\n\n\t\t\t\t\t<div id=\"elementor-tab-content-1984\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"4\" role=\"region\" aria-labelledby=\"elementor-tab-title-1984\"><p class=\"p1\">Yes. The molecule has been identified and tested in the lab. The next step requires funding.<\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<script type=\"application\/ld+json\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@type\":\"FAQPage\",\"mainEntity\":[{\"@type\":\"Question\",\"name\":\"Why is private funding needed?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p class=\\\"p1\\\">Ultra-rare diseases are usually not funded by pharmaceutical companies or public programs. Without private donations, this research cannot continue.<\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Where does my donation go?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p class=\\\"p1\\\">100% of all donations go directly into the research project at CMRI in Sydney and the collaboration with UMG G\\u00f6ttingen.<\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Does a small donation really help?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p class=\\\"p1\\\">Yes. Many small donations make the critical next research steps possible.<\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Is this research already underway?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p class=\\\"p1\\\">Yes. The molecule has been identified and tested in the lab. 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One Chance. Your Help. Together, we can return groundbreaking research into a real therapy for children affected by the ultra-rare PGAP1 gene defect Make a difference About IFUSE IFUSE is a non-profit initiative dedicated to advancing research on ultra-rare genetic diseases. These conditions affect only a handful of families worldwide and are often [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-49","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>About - IFUSE \u2013 Initiative zur Forschung an Ultra-Seltenen Erkrankungen.<\/title>\n<meta name=\"description\" content=\"IFUSE supports research on ultra-rare genetic diseases such as PGAP1. 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